Photographer Karen Haberberg has captured the lives of 27 children who have rare genetic diseases. Those conditions affect one out of 10 Americans, but 95 percent of them do not currently have an FDA-approved drug treatment., "A touching series of photos show what it's like to raise children with rare genetic conditions, and how some of them have grown into talented swimmers and cheerleaders despite their symptoms. Though by definition a rare genetic disease is uncommon, these photos show just how ordinary life can still be in the midst of one., A touching series of photos show what it's like to raise children with rare genetic conditions, and how some of them have grown into talented swimmers and cheerleaders despite their symptoms.
In her new book, An Ordinary Day, acclaimed NYC photographer Karen Haberberg is spotlighting the little-seen world of families raising medically complex children.
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